Sunday, August 18, 2019

The helmet

Wow! It has been awhile since I have posted anything on the blog. We have been enjoying some quiet time at home as we haven't had to rush to and from the hospital for appointments. 

I last left you, over a month ago, with Elias waiting to get his helmet. On July 18th, he was fitted for his helmet and we started to break it in. Over the next 5 days, we put Elias in the helmet with the 5th day having the helmet on for 23 hours a day. Also during this time, we went camping. Don't fret too much for us as we had my parent's hard-walled camper to sleep in, which has air conditioning. 

Elias has been adjusting well to the helmet. The helmet itself is a little frustrating. Elias has managed to wiggle in it and it shifts down past his eyes. A friend joked with me today that it is an eye guard for when Nathan might get too close with toys! We have had a couple of adjustment appointments to get the helmet from slipping down and I think it is finally good. Overall, Elias is used to the helmet. The helmet doesn't seem to bother him when he sleeps. 



Trying out the exer-saucer. Loving the big cheeks!


The 3 of us had a visit with my parents recently.
You can see how the helmet has slipped down to cover his eyes.

Child Developement Appointment

On Friday, July 19th I received a phone call from SSCY, Specialized Services for Children and Youth, to arrange an appointment for Elias to meet with the Child Development Doctor. They had a cancellation that day and I was able to take it. So off we went to SSCY, the old Christies' Cookies Building on Notre Dame Ave.

Dr. Ricci was the doctor we saw. She checked out Elias' development which included his reflexes, how he lifted his head, and how he tracked objects. Elias did really well with only some minor issues of holding up his head with his helmet on. Dr. R noticed how social Elias is as he would smile at her instead of tracking an object with his eyes. 

At the end of the appointment, Dr. R said that she wasn't concerned with Elias and his development. She also said that we had an excellent pediatrician and if our pediatrician thought we needed a follow-up later on, she could book it. Dr. R also referred us to a physiotherapist for Elias' head control. She thought that a physiotherapist could give us some exercises, besides tummy time, to help Elias strengthen his neck since his helmet is quite heavy.


4 Month Appointment

During this month, we also had Elias' 4 month appointment. He had his immunizations and check-up. Everything was pretty routine except for the fact that Elias is not pooping regular. Dr. Feierstein, Elias' pediatrician, suggested that we try to put him on solids and add some water to Elias' diet. As much as I have tried, Elias is not interested in eating yet. We will continue to try but we are not aggressively pushing it. Elias is content and happy so I've been trying not to worry about it too much. 

Elias' growth has been really great. Compared to the rest of the world, Elias is in the 50-75 percentile for his height and weight. His head circumference is in the 95% for his age. So we have a big headed kid. As long as he is gaining weight and content we are all happy!

Up Next

  • August 22 - A day of appointments - Genetics testing appointment, follow-up appointment with Neurosurgeon and Plastic Surgeon, and star scan (to check progress). 






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